... But most of you knew that.
I apologize for my lack of posting over the past few weeks. I have been pretty burned out on anything CF related. Unfortunately, that included my poor, neglected blog. I'm finally feeling a little less reclusive.
I have so many things to write about! Where to start? How about where I left off in my last post. I had my port accessed and that was a pain, a painful pain in the butt. Dr. Hulka did a great job placing my port so that it wouldn't be totally obvious but that also has a downside when it comes to access. Apparently, placing it deeper and therefor making it less noticeable also makes access more difficult. Also, the scar is directly above the access point. This first week it took three stabs to get the line placed. The second week it only took one try. Woo! This last week (the third and final) took another three tries. Not the best experiences of my life.
Other than difficult accesses and itchy dressings, this port thing isn't too bad. I'm able to wear t-shirts that cover it up completely and if you didn't know I had an IV in you definitely wouldn't be able to tell. That's a huge plus over the PICC lines. Also, the nice people at Arlington Clinical were able to put my high doses of antibiotics in syringes instead of pumps. That way a full dose of both antibiotics only takes about 20 minutes instead of two hours with the pumps. Those darn antibiotics haven't been very nice to me though. The first week was really, really tough. I was sleeping about 18 hours every day and when I was awake I didn't have the energy to do anything. Nausea also visited me more than a few times during these past few weeks. No fun. My body seems to have adjusted now and I've had more energy the past few days. Here's the great news: I get my IV pulled on FRIDAY!! Yeah, I'm just a little excited. I also have a doctors appointment with Dr. Budhecha on Wednesday and I'll let you know how that goes.
So what have I been doing to help pass the time between IV treatments? Hanging out with my Cierra and Allie! Gosh, I love those two. Supernatural marathons with Ce and nights at Allie's playing Candyland and Apples to Apples. These two have been incredible distractions. :)
All in all it's been a good few weeks but I couldn't be happier to get this IV out of me. Thank you to all of you for being such awesome friends and family. I don't know what I would ever do without you. I'll try and check back in sooner rather than later!
